Generic Ethics Principles in Social Science Research

The written output of a series of three symposia held in the spring of 2013 on the topic of Generic Ethics Principles in Social Science Research. The format for each symposium was the same: a main speaker introduced a paper that had been circulated in advance and this was followed by two formal discussants and then participation from the floor. Discussion in groups took place in the afternoon and there was then a brief plenary session. The stimulus paper from each event is reproduced in this publication along with papers from discussants and a summary of each discussion

Ethics assessment in research proposals adopting CRISPR technology

The rapid and exponential growth of genome editing has posed many challenges for bioethics. This article briefly explains the nature of the technique and the particularly rapid development of Clustered Regularly Interspaced Short Palindromic Repeat (CRISPR) technology. The international and, specifically, European-level systems for assessing the ethical issues consequent on these developments are outlined and discussed. The challenges posed by cases in China are summarized to raise concerns about how a more shared, universally consistent appraisal of bioethical issues can be promoted

Researching precarious, virtual and clandestine labour : Methodological and ethical challenges

© Ron Iphofen, Ursula Huws and Neil H. Spencer, 2022. This is an open access article distributed under the Creative Commons Attribution License, to view a copy of the license, see: https://creativecommons.org/licenses/by/4.0/Introducing this volume, this article reflects on recent changes that brought to the editors’ attention the need for this special issue on the methodological and ethical challenges facing those who research precarious, virtual and clandestine labour in the 21st century. An exponential spread of algorithmically managed platform labour, just-in-time working, micro-work, teleworking and other trends associated with digitalisation has converged with traditional patterns of work in the informal economy, including clandestine practices, such as the use of child labour, trafficked labour and slave labour, to create a dynamically shifting labour market that cannot be captured by traditional means using existing indicators. Simultaneously, digitalisation has introduced the possibility of new research methods, raising new ethical challenges, as well as stimulating the adaptation of older forms of ethnographic research including participant observation and action research. It discusses the articles in this issue, suggesting that they form the basis of an ongoing debate.Peer reviewedFinal Published versio

Before and after enforcement of GDPR: Personal data protection requests received by Croatian Personal Data Protection Agency from academic and research institutions

Introduction: The European Union’s (EU) General Data Protection Regulation (GDPR) was put in force on 25th May 2018. It is not known how many personal data protection requests the national authority in Croatia had received before and after GDPR, and how many of those were related to research. Materials and methods: We obtained data from the Croatian Personal Data Protection Agency (CPDPA) about requests/complaints related to personal data protection that were received specifically from academic/research institutions, specifically the number and type of all cases/requests between the years 2015-2019. Results: In 2018, CPDPA had a dramatic increase in the number of requests in the post-GDPR period, compared to the pre-GDPR period of the same year. In 2019, CPDPA received 2718 requests/complaints; less than in the year 2018. From 2015 to 2019, CPDPA received only 37 requests related to research. Conclusions: Very few requests about personal data protection from academic and research institutions in Croatia were submitted to the national Croatian data protection authority. Future studies could explore whether researchers have sufficient awareness and knowledge about personal data protection related to research, to adequately implement the GDPR regulations

Women and substance misuse

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